HSCT: An aggressive treatment
I felt that I needed to do another round of steroids so I scheduled a virtual visit with my neurologist at Cleveland. Through the visit and our phone conversation, it was apparent that we were not on the same page for my treatment plan. My neurologist wanted to do the right thing so he offered for me to see another neurologist of my choosing.
With a little research and the help of a good friend I requested to see the neurologist that was in charge of the HSCT Clinical Trail program at Cleveland Clinic. My neurologist followed up a few minutes later and told me that I would be given the opportunity to see this neurologist.
Here is information on HSCT. https://www.mssociety.org.uk/about-ms/treatments-and-therapies/disease-modifying-therapies/hsct
This is a risky and aggressive treatment option but, it is the only one that stops disease progression and improves disability outcome in the long term. I am currently in the process of getting approved to have the procedure done. In my opinion, I feel like I could have changed the direction of my disease if I had changed my diet when I was first diagnosed. The improvements that I saw in 2019 is proof. Unfortunately, I feel that the disease got ahead of my efforts. I will continue to post more information on this website and document my journey.
If you are reading this page, know that I do not recommend or advise anyone on their medications or choices of care for their disease. This information is here to tell you about my experience and to educate you on your choices. You must be your own advocate to get the best possible outcome. Do your research, ask your doctor questions, take notes on those answers and do more research before making a final decision. If you have questions, feel free to send me an e-mail.
